ASIP 2008 Conference Presentations
Table of Contents:
Pre-Conference Training: FIMR
Summary: This training is designed to assist local and state Fetal and Infant Mortality Review staff and team members better understand the FIMR process and enhance understanding of advanced issues related to infant mortality and improved pregnancy outcome.
Speakers:
National FIMR Update
Kathleen Buckley, MSN, CNM, Director, National Fetal and Infant Mortality Review (FIMR), Washington, DC
Increasing Capacity for Home Interviews
Patt Young, Contra Costa County FIMR Project Coordinator, Martinez, CA
[View Presentation]
What Have We Learned From Womens’ Stories?
Patt Young, Contra Costa County FIMR Project Coordinator, Martinez, CA
[View Presentation]
FIMR in Collaboration with Other Perinatal Initiatives– Healthy Start
Deborah Frazier, RN, BA, Director, Arkansas Health Services Permit Agency, Little Rock, AR
Panel: Making the Most of FIMR Findings: Helping Teams Move Recommendations to Action Assuring Cultural Competence in FIMR Actions
Jodi Shaefer, RN, PhD, Assistant Professor, Johns Hopkins University School of Nursing, Baltimore, MD
[View Presentation]
Crib Notes
Mary White, BSN, RN, Infant Health Promotion Program Coordinator, Oakland County Health Department Pontiac, MI
[View Presentation]
Michigan’s Interconception Care Project
Dawn Shanafelt, BSN, RN, Community Health Section Supervisor, Saginaw County Department of Public Health Saginaw, MI
[View Presentation] [View Presentation]
Adopting the FIMR Model to Review Other MCH Sentinel Events: FIMR FAS and FIMR HIV
Lynn Kleiman, MSW, Program Manager, Special Maternal and Child Health Projects, Detroit Department of Health and Wellness Promotion, Detroit, MI
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Pre-Conference Training: Infant Safe Sleep: Best Practices
Summary: In 2005 the American Academy of Pediatrics’ Task Force on Sudden Infant Death published a list of recommendations to reduce the risk of SIDS in the general population. Most of the list describes specific guidelines for the infant sleep environment. While it is now generally accepted that sleep environment plays a role in a significant number of infant deaths, translating the AAP recommendations into community action can be surprisingly difficult. Addressing inconsistent health education messages, sorting through the implications of a national diagnostic shift, and confronting long standing cultural practices complicate the process. This session will feature successful infant safe sleep strategies from three states.
Speakers:
Judith Bannon, BS, BA, Executive Director, SIDS of Pennsylvania, Inc.- Cribs for Kids, Pittsburgh, PA
[View Presentation]
Eileen Carlins, MSW, LSW, Director, Support and Education SIDS of Pennsylvania, Pittsburgh, PA
[View Presentation]
Marilyn Maggioncalda, MSN, BSN, Neonatal Nurse Practitioner, Providence Hospital, Southfield, MI
[View Presentation]
Nancy Maruyama, RN, Executive Director of Education and Community Outreach, Sudden Infant Death Services of Illinois, Inc., Naperville, IL
[View Co-Sleeping Handout][View Breastfeeding and SIDS Teams Handout] [View Breastfeeding Advocates Handout] [View Handout on Respecting our Differences]
Kathleen Graham, MHS, MSW, Program Director, National SUID/Child Death and Pregnancy Loss Program Support Center, Baltimore, MD
[View Presentation]
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Welcome Remarks: Infants at Risk: Science to Solutions
Sandra Frank, JD, CAE, President, The Association of SIDS and Infant Mortality Programs (ASIP); Executive Director, Tomorrow’s Child/Michigan SIDS
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Plenary Session Panel: From Research to Practice
Panelists:
Fern R. Hauck, MD, MS, Associate Professor of Family Medicine and Public Health Services, University of Virginia, Department of Family Medicine, Charlottesville, VA
Dr. Hauck provided an update on pacifiers as a protective factor for SIDS; maternal substance use (tobacco, alcohol and drugs) and SIDS; and a comparison of risk factors for SIDS and other sudden unexpected infant deaths.
[View Presentation]
Carl E. Hunt, MD, Professor of Pediatrics, Uniformed Services University of the Health Sciences, Chevy Chase, MD
Dr. Hunt updated participants on genetic risk factors for sudden unexpected infant death and implications for infant physiology.
[View Presentation]
Rachel Y. Moon, MD, Director of Academic Development and Associate Professor of Pediatrics, Children’s National Medical Center, Washington, DC
Dr. Moon addressed recent SIDS research findings that are directly relevant to the practice of medical, health, social work, education and other SIDS professionals.
[View Presentation]
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Online Grief Support
Speaker: John Canine, EdD, PhD, Licensed Psychologist, Maximum Living Consultants, Inc., Clarkston, MI
Summary: This presentation explained different types of online grief support and current trends in professional services. It included information about ethics, liability and the advantages and disadvantages of online communication.
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Plenary Session Panel: Moving Research to Advice
Panelists:
Fern R. Hauck, MD, MS, Associate Professor of Family Medicine and Public Health Services, University of Virginia, Department of Family Medicine, Charlottesville, VA
Dr. Hauck addressed pacifier use and potential barriers and challenges, with a focus on breastfeeding; current U.S. SIDS rates in comparison with other countries; and recommendations to achieve further reductions of SIDS.
Carl E. Hunt, MD, Professor of Pediatrics Uniformed Services University of the Health Sciences, Chevy Chase, MD
Dr. Hunt reviewed and discussed implications of genetic risk factors for potential infant screening recommendations.
Rachel Y. Moon, MD, Director of Academic Development and Associate Professor of Pediatrics, Children’s National Medical Center, Washington, DC
Dr. Moon addressed recent SIDS research findings.
[View Presentation for Moving Research To Advice][View Handout]
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Baby & Me – Tobacco Free Program: A Smoking Cessation Program that Works
Speaker: Laurie Adams, BS, Project Director, BABY & ME –Tobacco Free, Jamestown, NY
Summary: The Baby & Me – Tobacco Free Program is a cessation program that assists pregnant women to quit smoking and stay quit after the birth of the baby. This unique program offers support, education, and incentives for quitting smoking. The program provides at least four smoking cessation sessions during pregnancy that are based on the Clinical Practice Guideline, Treating Tobacco Use and Dependence, and engages them in early quit attempts. After the birth of the baby, the woman qualifies for free diapers for up to one year, contingent upon her staying smoke free. BABY & ME – Tobacco Free Program is currently under research through the Bassett Research Institute, with data released June 2009.
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Brain Findings in Sudden Unexpected Death in Toddlers
Speaker: Hannah Kinney, MD, Associate in Medicine and Professor of Pathology, Harvard Medical School, Children’s Hospital Boston, Boston, MA
Summary: Dr. Hannah Kinney is a leader in research directed at defining the causes of sudden infant death syndrome (SIDS). This keynote address reported on the potential relationship between febrile seizures and sudden unexpected death in toddlers.
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Motivational Interviewing
Speaker: Lisa Jones Ficker, MA, Motivational Interviewer Detroit Department of Health and Wellness Promotion, Detroit, MI
Summary: This introductory two-part workshop on Motivational Interviewing (MI) will discuss some of the scientific evidence of this technique’s effectiveness in facilitating change in persons with risky behavior. Also included will be opportunities to learn and practice basic MI skills, watch an expert demonstration of MI on video, and discuss ways to handle resistance to change and denial of risky behaviors. The workshop will include a discussion of how MI can be applied in public health settings and to behaviors associated with increased risk of SIDS.
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ASIP Psychosocial Survey
Speaker: Joan Arnold, PhD, RN, Chair, ASIP Research Committee; Professor, The College of New Rochelle School of Nursing; and Consultant, New York City Satellite Office/Public Health Solutions, New York State Center for Sudden Infant Death, Old Brookville, NY
Summary: The development of an original survey by the ASIP Research Committee on the Psychosocial Needs of Families to investigate parental grief following infant death was explored. Key elements of the survey was illustrated as well as the processes used to refine the survey through field testing. Assumptions based on supportive interventions resulting in the development of quantitative and qualitative measures of parental grief will be analyzed. Preliminary findings from the pretest of the survey provide an opportunity for discussion and suggest implications for a larger multi-site study of parental grief. The value of collaborative teamwork by the ASIP committee will be underscored.
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SIDS Outreach in Indian Country
Speaker: Geradine Simkins, RN, CNM, MSN, Nurse Midwife, President, Midwives Alliance of North America, Maternal and Child Health Consultant, Michigan Inter-Tribal Council, Maple City, MI
Summary: The Tribes located in the Northern Tier of the United States have the highest incidence of SIDS of any other Native communities. In response to this, NIH, NICHD has funded the development of some training and tools for local Native communities to use to raise awareness about SIDS risk factors and how to avoid them. This workshop will provide an overview of this projects and the materials developed.
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Partnership for Infant Survival: The National SUID/Child Death and Pregnancy Loss Consortium
Panelists:
Mary Adkins, RN, MSW, Project Director, National SUID/Child Death and Pregnancy Loss - Project IMPACT, Lansing, MI
Suzanne M. Bronheim, PhD, Project Director, National SUID/Child Death and Pregnancy Loss Project, National Center for Cultural Competence, Washington, DC
Kathleen Graham, MHS, MSW, Program Director, National SUID/Child Death and Pregnancy Loss Program Support Center, Baltimore, MD
John Richards, MA, AITP, Research Professor, Health Policy Institute, Georgetown University, Washington, DC
Summary: With support from the federal Maternal and Child Health Bureau, the National SUID/Child Death and Pregnancy Loss consortium provides resources:
The National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center at Georgetown University; The National Sudden and Unexpected Infant/Child Death and Pregnancy Loss–Project IMPACT, affiliated with the Association of SIDS and Infant Mortality Programs; The National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Program Support Center at First Candle (formerly SIDS Alliance); and The National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project at the National Center for Cultural Competence at Georgetown University. In this workshop, Panelists representing the four centers presented (1) an overview of each center; (2) specific resources and action-based initiatives; and (3) current collaborations with diverse partners.
[View NCCC Presentation][View NSIDPSC Presentation][View NSIDRC Presentation]
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Moving from Awareness to Behavior Change: What Social Marketers Can Teach Us
Speaker: Suzanne M. Bronheim, PhD, Project Director, National SUID/Child Death and Pregnancy Loss Project, National Center for Cultural Competence, Washington, DC
Summary: Public health efforts to affect behavior changes such as sleep practices, smoking cessation, etc. find that raising awareness is much easier than impacting behavior change. The concept of diffusion of innovations (Rogers) developed within the social marketing world can help us rethink the ways we approach health promotion activities for greater success.
[View Presentation]
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Mother to Baby Education Project: A Model for Literacy Challenged Learners
Speaker:Jan A. Walkden, RN, BSN, MSN, Western New York State Center for Sudden Infant Death, Cheektowaga, NY
Summary: In a world permeated with words, pictures and media we often
assume everyone gathers new information in a similar way.
Explore how differently we learn and how to structure education
materials to produce positive outcomes for literacy challenged
learners.
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Retrospective Analysis on Infant Death Study
Speaker:James S. Kemp, MD, Professor of Pediatrics St. Louis University School of Medicine, St. Louis, MO
Summary: We have undergone a diagnostic shifting as a natural and predictable consequence of highly successful efforts to understand SIDS and reduce causal risk factors. This presentation will consider the paradox that the new information gained from more frequent death-scene investigations of SIDS has led to diagnosis of fewer unexplained deaths. The patterns of diagnostic shifting in Michigan will also be addressed.
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Medical Examiners Panel: The Forensic Pathologist and the Family Bed: Friends or Foes?
Panelists:
Joyce DeJong, DO, Forensic Pathologist, Department of Pathology, Sparrow Hospital, Lansing, MI
Jeffrey Jentzen, MD, Director of Autopsy and Forensic Services; Current President of the National Association of Medical Examiners and former Chief Medical Examiner for Milwaukee County, The University of Michigan, Ann Arbor, MI
Joseph Prahlow, MD, South Bend Medical Foundation and Immediate Past President and current Chairman of the Board of the National Association of Medical Examiners, South Bend, IN
Carl Schmidt, MD, Chief Medical Examiner Wayne County Office of the Medical Examiner, Detroit, MI
Daniel Spitz, MD, Chief Medical Examiner, Macomb County, Clinton Twp., MI
Summary: Numerous studies have suggested that bed sharing is a practice that remains on the rise. African-Americans are four times as likely as Whites to sleep in the same bed with their infant, and Asians are three times as likely, yet there are startling differences in the incidence of sudden infant death in all three of these groups. Bed-sharing infants are twice as likely to be covered by a quilt or comforter and nearly 50% of low income, innercity mothers report bed-sharing in the first year. Proponents of the practice state it leads to more and longer breast-feeding, enhances maternal-infant bonding and is actually protective against SIDS. Opponents cite risk factors to infants such as falls, overlying, wedging or entrapment and thermal stress. Today’s panel shall share their experiences in the investigation of sudden unexpected infant death and the impact of the family bed on these investigations. While viewpoints may vary, the public-health goal is a safe sleeping environment for every infant. Can the family bed provide that environment? Can safe bed sharing be taught in an immensely diverse society? What is the role of the forensic pathologist in informing these important public-health decisions?
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Keynote Address: CDC’s Sudden, Unexpected Infant Death (SUID) Initiative Activities Update and Progress toward a National SUID Case Registry in the United States
Speaker: Carrie K. Shapiro-Mendoza, PhD, MPH, Epidemiologist, CDC Sudden Unexpected Infant Death Initiative, Centers for Disease Control and Prevention, Atlanta, GA
Summary: The Centers for Disease Control and Prevention (CDC), as part of their Sudden Unexpected Infant Death (SUID) Initiative, has under taken both research and program activities to better understand and prevent SIDS and SUID in the United States. This presentation will update participants about CDC’s SUID Initiative activities and accomplishments to date and describe CDC’s new efforts in establishing a national SUID case registry.
The goal of the SUID case registry is to collect comprehensive epidemiological data from multiple sources about the circumstances and factors associated with SUID deaths. The information collected will improve our understanding of the incidence and risk factors associated with SUID, so that public health officials, prevention groups, and policy makers have accurate information available to implement effective prevention strategies. The CDC has held two information gathering sessions where they convened a group of professionals with expertise in the investigation, reporting, and prevention of SUID deaths. The participants’ ideas and suggestions are being used to assist CDC in defining the technical aspects and methods necessary to develop and implement a SUID case registry, including a comprehensive understanding of stakeholders, potential data sources and logistics in collecting and analyzing information.
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Closing Session: LaughterCare
Speaker: Nancy Weil, BS, CLL, GMS, President, The Laugh Academy, Getzville, NY
Summary: Everyone has to deal with a loss at some point in their lives. Whether it is from a change in jobs, a divorce or the death of a loved one, learning to cope with the loss is critical. While grief is expressed in different ways for every person, having some tools to help you get through a difficult time can help to ease the pain. Therapeutic laughter not only reduces stress, but helps balance the emotions by boosting the immune system and giving the person permission to laugh and feel joy, even for a moment. Humor is known to help make even the toughest times bearable. Join Nancy and explore ways to use this helpful tool.
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